An Angel Among Us
I already knew I was an Angel, when mom and dad found out. I just couldn't let them in on the secret until it was time. Dr. Kwon (my neuro doctor) let mom and dad know last week that my test results showed that I had Angelman's Syndrome (for more info go to the really cool Angelman Sydnrome Foundation link on the blog). Now before you all go and get emotional, please let me tell you... I'm still the spunky two year old I was before we had a name for my gimmicks! It's not life threatening, but it will create some chaos for us once and a while. I love chaos. It's also the reason why I put EVERYTHING in my mouth, why I am so cheerful and love the water, could you imagine if I wasn't so happy and peppy? Pretty boring. So what if my preferred method of communication is through signs and pictures, and it may take me longer to accomplish milestones. At least I will have fun doing it! Me, momma, and daddy plan on taking the bull by the horns and ride em cowboy. We've met so many nice people on the Angelman's listserv and through the ASF. Theres a great community of friends out there, so don't you worry! We're recruiting folks to donate to the Walk A Thon in May (20th), it will be my first official outing with other Angels- I can't wait! (too bad it isn't a swim a thon :-)) Let momma know if you want to contribute.
So this weekend I went to swimming lessons and made momma get in, cuz I was cranky. The water was a little chilly and I felt in order to fully relish in it's frigidness, mom needed to get wet too! We played the "wheels on the bus" and watched some of my friends swim too. I got to stay up super late on Saturday because we went to a friend's house. It was so late when we got home, it was time for me to get up! So I decided it might be nice to sleep with mom and dad (dad loves this because I get to play "wack a mole" to wake him up- just kidding). Sunday we got up early and watched a movie, and Grampa Bob and Grandma Linda brought over scones (they were yummy). Nana and Pen came by too later that evening and played. That's all for now. Don't forget to be nice to someone today (life's too short to be nasty!)- Hugs and Kisses- AriBethyBoo


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