Angelman Syndrome Awareness Day is May 19th
3 weeks and counting til my little sister gets here. I’m making momma type fast so she doesn’t forget what to write as she has been forgetting things a lot lately. First thing’s first we have to give a big ole THANK YOU to Daddy. He has been housewife extraordinaire lately doing dishes, laundry, the yard work, and the cooking. Thanks Dad!
Update on the WALK A THON… if you haven’t had a chance to pitch in go to www.firstgiving.com/ariannasawesomeadventure and join us! We get the final verdict next Wednesday on whether or not we can go to Philly. Wouldn’t want our newest star to make an early appearance in an unplanned city- although that would totally show up my superstardom for some time.
SUPER DUPER SPECIAL shout out to our Legislative Reps: Jim Bacalles and George Winner for getting the State Legislature to pass our annual Angelman Syndrome Awareness Day for Saturday May 19th, 2007. It was passed 1 year –to the day- of my diagnosis. Momma sent out a press release to the local news orgs, we’ll see if anyone bites, if not we’ll spread the word ourselves!
Mother’s day is this weekend, and we need to take a moment to thank all those special folks in our lives that do the Mom thing. These people can be male or female as sometimes “Mom” is filled in by surrogates who do the job just as well! How are we going to celebrate… well we thought us girls would go out and color the world with pansies! AKA we’re going flower shopping with Nana then we get to garden… I’m all about the mud and water. Can you say big ole mess!
I’m totally enjoying this super weather. I have gotten to play in my bouncy house (thanks Bubbe and Grandpa!) with dad and it is super cool. I have also had a chance to play in the back yard where I like to run off on momma (since she can’t catch me) and hide behind the shed. The front porch is great too for socializing with the neighbors and laughing at all the people who walk by.
Grandpa Bob opened his pool last weekend, but I guess it was too cold to get in. Says who? It’s never too cold for a dip! But alas I will have to wait till momma says it’s ok. I just can’t wait to show off all the new tricks Miss Lisa (my swim teacher) has shown me. Did I mention there are way cute lifeguards at the pool who just love to say hi to me?
Finally I have to give a hand to Miss Maggie Hickey, who threw the golden temper tantrum last week. Alas, good Mag I have taught you well! You go girl!
So who knows when I’ll get to post again, since mom is crazy. Feel free to write and be sure to know that I will send the mother of all press releases out via the blog when the newest Rock Star of the family gets here. Happy Spring, Happy Mother’s Day, but most of all spread the news about ANGELMAN SYNDROME AWARENESS DAY!
Peace- Arianna E
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